Showing posts with label heart. Show all posts
Showing posts with label heart. Show all posts

20 April 2013

One Foot In Front of The Other



I love the song from my friends, Building429

"That's how I'm going to discoverOne foot, one foot at a timeOne foot, one foot at a time"
The past few days have seen some ups and downs, brought a lot of questions with little answers and lots of prayers and tears.  Since my last post on Tues. a number of things have happened.



  1. Dad's MRSA infection is gone but his white count is still up and he's still losing blood somewhere. The ID (infectious disease) doc is still trying to figure out why. Yay for no more yellow coats and purple gloves! We don't know the state of his heart and whether or not it might be infected still.
  2. After days of confusion and very cloudy conversations, dad's finally having full thoughts and conversations, remembering most of the recent experiences and people that have stopped by.  The timeline is a little fluid, hours feel like days, days feel like weeks. Speech Therapy will be working to see how his higher cognitive abilities are working
  3. For a hot second, dad's heart converted from afib back to a normal sinus rhythm. Ok, a little longer than a hot second, more like five or six hours but sometime overnight went back to afib.  We were told by one of the cardiologist that if we can catch it again in sinus rhythm, they can chemically keep it steady, the trick is catching it when it does.
  4. Dad has been moved from ICU to CVStepDown (my mom's floor) again because his CT scan came back showing no more bleeding or other worry spots.  There are some residual effects that the ID doc said might have caused an unexpected fever spike last night (06.18.13) as well as the tiredness and confusion due to the stroke pattern appearing wedged shape (i wish i could see this?!) There are also some signs that, probably due to age, small sections of his brain probably aren't working.
Now, to give information about today.

  1. A test that the cardiologist tried to perform on Thursday but couldn't because my dad's neck was bothering him too much, will hopefully be performed on Tues (04.23.13) afternoon.  This test, a TEE (trans-esophageal echocardiogram) will give the doctors are very clear view of the status of my dad's heart.  What they are most interested in seeing is: first, is there any vegetation of the heart (how much, how bad) and, second, what is the status of the ruptured mitral valve and does it need immediate surgery or could it be postponed?
  2. The next part of treatment after the TEE is tricky and multifaceted.  If the heart is infected, the means in which to treat it is necessary before they can even consider doing any operations on my dad so finding the right antibiotic and dosage will be key.  After that is done and the heart needs to be repaired soon, a surgeon, as well as us, will have to take the risk of putting him under knife and blood thinner (which is necessary for open heart surgery because the blood is ran through the heart-lung machine) to repair the valve. This is risky because the blood thinner might cause another clot to break off and cause yet another stroke, one much worse than he had.  He hasn't been on blood thinner since the last major episode. If the heart isn't infected but the leak is bad, again, same as last - surgery. If the heart is infected but the valve doesn't look very bad, they will have to do surgery to fix the part that is infected - thinner is still involved.

    All this to write, the
    ultimate best case scenario: no infection, no vegetation, mitral valve has minimal damage.
    There outcomes to the others are either, stroke, heart attack or the end. the word i'm refusing to speak of because I'm choosing to be an optimist rather than my usual pessimistic self.

And so... this is where we are at the end of the day, er... morning.


Current Prayer Requests.
  1. stay stable for the TEE (on Tuesday)
  2. no more afib! catch the sinus rhythm and medically help it stay
  3. no infection of the heart
  4. mitral valve tear is minimal
  5. discover where he's losing blood
  6. start some PT as to get active
  7. start being more alert and awake
  8. Justin - he has to travel and get back to work on Sunday in Hawaii.
Thank you all for your continued prayer and support. It is incredible how the community has gathered around to pray for us and we hope that we can be a support to you all in your journey.  We feel the comfort of His grace around us.




16 April 2013

The Battle Is Thick Today.

Yesterday was a stable day with more tests for my dad. Today those results came in and they are not what we wanted to hear.  My dad's heart has a number of issues at hand that are all odds stacked against him.

The echo that was performed yesterday showed... a whole large explanation with lots of big words that I don't understand. The main words that we currently are concerned with are "prolapse of posterior leaflet" and "flail mitral leaflet w/ ruptured chordae" which in short means that the mitral valve is not functioning properly and needs to be repaired. This valve rupture is probably what caused the stroke.  Having had the stroke, being a heart attack survivor and having had work already done on his heart, greatly affects whether they would consider doing the surgery to repair it.

There is some concern that the infection of the blood might be due to endocarditis, an infection of the heart. They aren't sure on this yet but if so, this is not a good thing. They are also noticed possible "vegetation" in his heart which is also not a good thing.  It means that those parts of his heart are no longer working.  His heart is also in AFIB still and that doesn't help with anything.

I don't understand a lot of what's going on right now, but I wanted to write the things that have transpired today.

Prayer Requests

  1. Pain Management for his back so that he can stay comfortable.
  2. Choosing the best path of care.
  3. Comfort for our family. Thankful to have my brother here from out of town to be with us during this time.
It's hard to request a miraculous repair of his heart but that is my selfish request. 
I also trust that our God is Sovereign and in control. May He be the comfort to my hurting soul.

"O God, you are my God;  earnestly I seek you; my soul thirsts for you; my flesh faints for you, as in  a dry and weary land where there is no water. So I have looked upon you in the sanctuary, beholding  your power and glory. Because your  steadfast love is better than life, my lips will praise you. So I will bless you  as long as I live; in your  name I will  lift up my hands." - Psalms 63:1-4